Completed
Under the auspices of mutliple facets of the National Academy of Sciences and the Insitute of Medicine, an interdisciplinary ad hoc committee hosted a public workshop that brought together the scientific, medical, legal, and policy communities and members of the public to explore the opportunities and challenges posed by direct-to-consumer genetic testing. The workshop featured presentations and discussions on the many technical, legal, policy, and ethical questions that such testing raises.
Featured publication
Workshop
·2011
Today, scores of companies, primarily in the United States and Europe, are offering whole genome scanning services directly to the public. The proliferation of these companies and the services they offer demonstrate a public appetite for this information and where the future of genetics may be heade...
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Description
Staff members from the Committee on Science, Technology, and Law, Board on Health Sciences Policy, Board on Life Sciences, and Health Care Services will organize a public workshop that will bring together the scientific, medical, legal, and policy communities along with members of the public to explore the opportunities and challenges posed by direct-to-consumer genetic testing. The workshop will feature invited presentations and discussions on the myriad of technical, legal, policy, and ethical questions that such testing raises, including (1) Overview of the Current State of Knowledge and the Future Research Trajectory; (2) Shared Genes and Emerging Issues in Privacy; (3) The Regulatory Framework; and (4) Education of the Public and the Medical Community. An individually-authored workshop summary will be issued.
Collaborators
Sponsors
Internal Funding
Staff
Anne-Marie Mazza
Lead