AAP

American Academy of Pediatrics

ABCD

Assuring Better Child Health and Development

ACA

Patient Protection and Affordable Care Act

ACE

Adverse Childhood Experiences Study

ACO

accountable care organization

ACS

American Community Survey

ADD

attention-deficit disorder

Add Health

National Longitudinal Study of Adolescent Health

ADHD

attention-deficit/hyperactivity disorder

ADL

activities of daily life

AHRQ

Agency for Healthcare Research and Quality

AMA-PPMC

American Medical Association-Physician Practice Management Company

ARRA

American Recovery and Reinvestment Act

ASQ

Ages and Stages Questionnaires

BINS

Bayley Infant Neurodevelopmental Screens

BMI

body mass index

BRFSS

Behavioral Risk Factor Surveillance Survey

CAHMI

Child and Adolescent Health Measurement Initiative

CAHPS

Consumer Assessment of Healthcare Providers and Systems

CBO

Congressional Budget Office

CCS

Clinical Classification System

CCU

critical care unit

CDC

Centers for Disease Control and Prevention

CDHCPF

Colorado Department of Health Care Policy and Financing

CHICA

Child Health Improvement through Computer Automation

CHIP

Children’s Health Insurance Program

CHIPRA

Children’s Health Insurance Program Reauthorization Act

CHP

Center for Health Policy

CMS

Centers for Medicare and Medicaid Services

COH

Children’s Optimal Health

CPI

Consumer Price Index

CPS

Current Population Survey

CSHCN

Children with special health care needs

CWI

Child Well-Being Index

DRC

Data Resource Center for Child and Adolescent Health

DX

diagnosis

EBP

evidence-based practice

ECLS-B

Early Childhood Longitudinal Study-Birth Cohort

ECLS-K

Early Childhood Longitudinal Study-Kindergarten Class

ED

emergency department

EDC

Education Development Center

E-HIE

electronic health information exchange

EHR

electronic health record

EPA

Environmental Protection Agency

EPC

Evidence-based Practice Center

EPSDT

Early and periodic screening, diagnosis and treatment

ETS

Educational Testing Service

FAcct

Foundation for Accountability

FERPA

Family Educational Rights and Privacy Act of 1974

FIFCFS

Federal Interagency Forum on Child and Family Statistics

FPL

federal poverty level

GIS

geographic information system

GSMS

Great Smoky Mountains Study

HCUP

Healthcare Cost and Utilization Project

HEDIS

Healthcare Effectiveness Data and Information Set

HHS

U.S. Department of Health and Human Services

HIPAA

Health Insurance Portability and Accountability Act

HIT

Health information technology

HITECH

Health Information Technology for Economic and Clinical Health

HRSA

Health Resources and Services Administration

ICD-9

International Classification of Diseases, Ninth Revision

ICD-10

International Classification of Diseases, Tenth Revision

ICF

International Classification of Functioning

ICU

intensive care unit

IHS

Indian Health Service

IOM

Institute of Medicine

IQI

Inpatient Quality Indicator

IT

information technology

KID

Kids’ Inpatient Database

KIDS

Kids Integrated Data Set

MACPAC

Medicaid and CHIP Payment and Access Commission

MCH

maternal and child health

MCHB

Maternal and Child Health Bureau

MCO

managed care organization

MEPS

Medical Expenditure Panel Survey

MMIS

Medicaid Management Information System

MOU

Memorandum of Understanding

MSIS

Medicaid Statistical Information System

MST

multisystemic therapy

NAMCS

National Ambulatory Medical Care Survey

NCES

National Center for Education Statistics

NCHHSTP

National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention (Centers for Disease Control)

NCHS

National Center for Health Statistics

NCQA

National Committee for Quality Assurance

NCS

National Children’s Study

NDACAN

National Data Archive on Child Abuse and Neglect

NDI

National Death Index

NEDS

Nationwide Emergency Department Sample

NHAMC

National Hospital Ambulatory Medical Care Survey

NHANES

National Health and Nutrition Examination Survey

NHCS

National Health Care Survey

NHDS

National Hospital Discharge Survey

NHES

National Household Education Surveys

NHHCS

National Home and Hospice Care Survey

NHIS

National Health Interview Survey

NICHQ

National Initiative for Children’s Healthcare Quality

NICHSR

National Information Center on Health Services Research and Health Care Technology

NICU

neonatal intensive care unit

NIH

National Institutes of Health

NIMH

National Institute of Mental Health

NIS

National Immunization Survey

NIS

Nationwide Inpatient Sample

NORC

National Opinion Research Center

NQF

National Quality Forum

NRC

National Research Council

NS-CSHCN

National Survey of Children with Special Health Care Needs

NSAF

National Survey of American Families

NSCAW

National Survey of Child and Adolescent Well-being

NSCH

National Survey of Children’s Health

NSECH

National Survey of Early Childhood Health

NSFG

National Survey of Family Growth

NVSS

National Vital Statistics System

ODD

oppositional defiant disorder

OMB

Office of Management and Budget

PCOR

Primary Care and Outcomes Research

PCP

primary care provider

PDI

Pediatric Quality Indicator

Pedi-QS

Pediatric Data Quality System Collaborative Measure Workgroup

PEDS

Parents’ Evaluations of Developmental Status

PELL

Pregnancy to Early Life Longitudinal

PHDS

Promoting Healthy Development Survey

PHR

personal health record

PQI

Prevention Quality Indicator

PQRI

Physician Quality Reporting Initiative

PRAMS

Pregnancy Risk Assessment and Monitoring System

PROMIS

Patient-Reported Outcomes Measurement Information System

PSI

Patient Safety Indicator

PSID

Panel Survey of Income Dynamics

PSQIA

Patient Safety and Quality Improvement Act of 2005

QISMC

Quality Improvement System for Managed Care

QSDE

Qualified State-Designated Entity

QUAL

Quality

RIACC

Rhode Island Asthma Control Coalition

RICCC

Rhode Island Chronic Care Collaborative

RWJF

Robert Wood Johnson Foundation

SASD

State Ambulatory Surgery Databases

SCHIP

State Children’s Health Insurance Program (now CHIP)

SED

severe emotional distress

SEDD

State Emergency Department Databases

SEER

Surveillance, Epidemiology, and End Results

SID

State Inpatient Databases

SIDS

sudden infant death syndrome

SIPP

Survey of Income and Program Participation

SLAITS

State and Local Area Integrated Telephone Survey

SNAC

AHRQ Subcommittee on Quality Measures for Children in Medicaid and Children’s Health Insurance Programs

SNOMED

Systematized Nomenclature of Medicine

SSI

Supplemental Security Income

STD

sexually transmitted disease

STI

sexually transmitted infection

TB

tuberculosis

UCLA

University of California, Los Angeles

UCSF

University of California, San Francisco

WHO

World Health Organization

WIC

Supplemental Nutrition Program for Women, Infants, and Children

WISQARS™

Web-based Injury Statistics Query and Reporting System

WPPSI

Wechsler Preschool and Primary Scale of Intelligence

YAHCS

Young Adult Health Care Survey

YRBS

Youth Risk Behavior Survey