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Workshop Agenda and Participants

Workshop on Pediatric Health and Health Care Quality Measurement and Information Needs

Agenda

March 23, 2010

WORKSHOP GOALS:

• To highlight unmet measurement and information needs from a broad group of data users
• To gather information to support the development of a framework, a subset of measures, and a data system for child health and health care quality measures
• To illustrate innovative and exemplary data collection efforts to support the development of a framework for a comprehensive data support system

WORKSHOP ORGANIZATION:

The workshop will be comprised of four sessions featuring speaker presentations followed by panel discussions (15 minutes per speaker presentation; 30 minutes for each panel discussion).

The panels are organized to hear the perspectives of four major stakeholder groups:

PARTICIPANT LIST

Committee Members:

Gordon H. DeFriese, Ph.D. (Chair), Cecil G. Sheps Center for Health Service Research, University of North Carolina at Chapel Hill

Paula A. Braveman, M.D., M.P.H., Center on Social Disparities in Health, University of California, San Francisco

Claire D. Brindis, Dr.P.H., Philip R. Lee Institute for Health Policy Studies, University of California, San Francisco

Barbara J. Burns, Ph.D., Department of Psychiatry and Behavioral Sciences, Duke University School of Medicine

Glenn Flores, M.D., Department of Pediatrics, University of Texas Southwestern Medical Center at Dallas

Gary L. Freed, M.D., M.P.H., Department of Pediatrics, University of Michigan Health Systems

Deborah A. Gross, D.N.Sc., Department of Acute and Chronic Care, Johns Hopkins School of Nursing

Maxine Hayes, M.D., M.P.H., State of Washington, Department of Health

Charles J. Homer, M.D., M.P.H., National Initiative for Children’s Healthcare Quality

Kevin B. Johnson, M.D., M.S., Department of Biomedical Informatics and Department of Pediatrics, Vanderbilt University School of Medicine

Genevieve Kenney, Ph.D., The Urban Institute

Marie C. McCormick, M.D., Sc.D., Department of Society, Human Development and Health, School of Public Health, Harvard University

Kathryn M. McDonald, M.M./M.B.A., Center for Primary Care and Outcomes Research, Stanford University School of Medicine

Michael J. O’Grady, Ph.D., Health Policy and Evaluation Department, National Opinion Research Corporation at the University of Chicago

Alan R. Weil, J.D., M.P.P., National Academy for State Health Policy

Alan M. Zaslavsky, Ph.D., Department of Health Care Policy, Harvard Medical School

Workshop Presenters:

Russell Frank, M.S., Vermont Department of Health

Foster Gesten, M.D., Office of Health Insurance Programs, New York State Department of Health

Darcy Gruttadaro, J.D., Child and Adolescent Action Center, National Alliance for the Mentally Ill

Linda Juszczak, D.N.Sc., M.S., M.P.H., National Assembly on School-Based Health Care

Richard G. Kronick, Ph.D., Office of Health Policy, HHS Office of the Assistant Secretary for Planning and Evaluation

Edward L. Schor, M.D., The Commonwealth Fund

Donald F. Schwarz, M.D., M.P.H., City of Philadelphia

Xavier Sevilla, M.D., Manatee County Rural Health Services Inc., Whole Child Pediatrics

Judith Thierry, D.O., M.P.H., F.A.A.P., Maternal and Child Health, HHS Indian Health Service

Joseph W. Thompson, M.D., M.P.H., Center for Health Improvement, State of Arkansas

Sandeep Wadhwa, M.D., M.B.A., Colorado Department of Health Care Policy and Financing

Nora Wells, M.S.Ed., Family Voices

National Academies Staff:

Rosemary Chalk, Study Director

Patti Simon, Program Officer

Pamella Atayi, Senior Program Assistant

Chelsea Bodnar, Christine Mirzayan Science and Technology Policy Fellow

Wendy Keenan, Program Associate

Julienne Palbusa, Research Assistant

Registered Attendees:

Jennifer Burks, Health Resources and Services Administration

Tim S. Bushfield, U.S. Government Accountability Office

Barbara A. Dailey, Centers for Medicare and Medicaid Services

Maushami DeSoto, Agency for Healthcare Research and Quality

Denise Dougherty, Agency for Healthcare Research and Quality

Elaine Duffee, Engelberg Center for Health Care Reform

Sarah Edwards, The National Academies, Christine Mirzayan Science and Technology Policy Fellow

Michael Ellwood, National Association of Children’s Hospitals and Related Institutions

Gerry Fairbrother, Cincinnati Children’s Hospital Medical Center

Richard Fenton, National Association of State Medicaid Directors

Patricia Franklin, National Association of Pediatric Nurse Practitioners

Rita Munley Gallagher, American Nurses Association

Mengfei Huang, The National Academies, Christine Mirzayan Science and Technology Policy Fellow

David Keller, HHS Office of the Assistant Secretary for Planning and Evaluation

Kristina Krasnov, The National Academies, Christine Mirzayan Science and Technology Policy Fellow

Marcia Lillie-Blanton, The George Washington University

Hannah S. Locke, U.S. Government Accountability Office

Susan L. Lukacs, Centers for Disease Control and Prevention

Patricia MacTaggart, The George Washington University

Nick Manetto, B&D Consulting

Jessica L. McAuliffe, Cincinnati Children’s Hospital Medical Center

Poornima Nayak, American Public Human Services Association

Sarah Hudson Scholle, National Committee for Quality Assurance

Ellen Schwalenstocker, National Association of Children’s Hospitals and Related Institutions

Katie Sellers, Association of State and Territorial Health Officials

Alan E. Simon, Centers for Disease Control and Prevention

Jan Strozer, National Assembly on School-Based Health Care

Caroline Taplin, HHS Office of the Assistant Secretary for Planning and Evaluation

Tatiana Zenzano, HHS Office of Public Health and Science