Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness (2015)

Chapter: Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms

Previous Chapter: Appendix C: Disability in ME/CFS
Suggested Citation: "Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms." Institute of Medicine. 2015. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington, DC: The National Academies Press. doi: 10.17226/19012.

D


Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms
1

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1 Further evidence of utility is needed.

Suggested Citation: "Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms." Institute of Medicine. 2015. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington, DC: The National Academies Press. doi: 10.17226/19012.
Symptoms/Manifestations Tools or Questionnaires Access Link
Fatigue The Chalder Fatigue Scalea http://www.goodmedicine.org.uk/files/assessment,%20chalder%20fatigue%20scale.pdf
  Multidimensional Fatigue Inventorya http://www.cdc.gov/cfs/pdf/wichita-data-access/mfi-doc.pdf
  Fisk Fatigue Impact Scalea http://www.actaneurologica.be/acta/download/2003-4/01Kos%20et%20al.pdf
  The Krupp Fatigue Severity Scalea http://www.abiebr.com/set/17-assessment-outcomes-followingacquiredtraumatic-brain-injury/177-fatigue-severity-scale-fss
  Checklist of Individual Strengthb http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1739950/pdf/v057p00353.pdf
  DePaul Symptom Questionnaireb,c http://condor.depaul.edu/ljason/cfs
  CDC Symptom Inventory for CFSb,c http://www.institutferran.org/documentos/cdc_full_symptom_inventory.pdf
  NOVA formd http://www.nova.edu/nim/patients/forms/fatigue-scale.pdf

Substantial decrease or impairment in function: adults

Work and Social Adjustment Scale (WSAS)a

serene.me.uk/tests/wsas.pdf

  Energy Index Point Scorea http://www.treatmentcenterforcfs.com/energy_index_score
  SF-36b (RAND-36 is available as a free version of SF-36) http://www.sf-36.org/tools/pdf/SF-6v1_Standard_Sample.pdf
  The Lawton Instrumental Activities of Daily Living (IADL) Scaled http://consultgerirn.org/uploads/File/trythis/try_this_23.pdf
  Katz Index of Independence in Activities of Daily Livingd http://clas.uiowa.edu/socialwork/files/socialwork/NursingHomeResource/documents/Katz%20ADL_LawtonIADL.pdf
  FIQR (Fibromyalgia Impact Questionnaire Revised)d http://fiqrinfo.ipage.com/FIQR%20FORM.pdf

Substantial decrease or impairment in function: children

Short form of the Child Health Questionnaireb

http://jech.bmj.com/content/59/1/75.full.pdf+html

  Pediatrics Quality of Life Inventory (PedsQL)d http://www.pedsql.org
Suggested Citation: "Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms." Institute of Medicine. 2015. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington, DC: The National Academies Press. doi: 10.17226/19012.
Suggested Citation: "Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms." Institute of Medicine. 2015. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington, DC: The National Academies Press. doi: 10.17226/19012.
Symptoms/Manifestations Tools or Questionnaires Access Link

Pain

PROMISb

http://www.assessmentcenter.net

  SF-36b http://www.sf-36.org/tools/pdf/SF-6v1_Standard_Sample.pdf
  McGill Pain Questionnaired http://www.ama-cmeonline.com/pain_mgmt/pdf/mcgill.pdf
  Brief Pain Inventoryd http://www.npcrc.org/files/news/briefpain_short.pdf
  Pain diagramd http://alaska.providence.org/locations/pvmc/Documents/Pain%20Diagram.pdf

a Questionnaires used or tested in ME/CFS patients that may be useful tools in a clinical setting.

b Questionnaires used or tested in ME/CFS patients that may be difficult to apply in a clinical setting.

c Questionnaires that evaluate the full range of ME/CFS symptomatology (fatigue, decrease in function, post-exertional malaise [PEM], sleep problems, cognitive symptoms, pain).

d Questionnaires not formally tested in ME/CFS patients that may be useful tools in a clinical setting.

Suggested Citation: "Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms." Institute of Medicine. 2015. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington, DC: The National Academies Press. doi: 10.17226/19012.
Page 269
Suggested Citation: "Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms." Institute of Medicine. 2015. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington, DC: The National Academies Press. doi: 10.17226/19012.
Page 270
Suggested Citation: "Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms." Institute of Medicine. 2015. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington, DC: The National Academies Press. doi: 10.17226/19012.
Page 271
Suggested Citation: "Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms." Institute of Medicine. 2015. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness. Washington, DC: The National Academies Press. doi: 10.17226/19012.
Page 272
Next Chapter: Appendix E: Biographical Sketches of Committee Members, Consultants, and Staff
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