The Keck Center, 500 Fifth Street, NW
Washington, DC 20001
MEETING 1
JANUARY 26, 2023
VIRTUAL
| 3:05 p.m. | Welcome and Introductions |
| Paul Volberding, Committee Chair | |
| Steve Rollins, Acting Associate Commissioner, U.S. Social | |
| Security Administration (SSA) | |
| 3:15 p.m. | Social Security Administration Overview |
Vincent Nibali, Policy Analyst, Office of Medical Policy & Office of Disability Policy
|
| 3:40 p.m. | Questions and Discussion |
| Committee Members and SSA Staff | |
| 4:30 p.m. | Adjourn Public Session |
The Keck Center, 500 Fifth Street, NW
Washington, DC 20001
MEETING 2
FEBRUARY 12, 2023
KECK 100
| 1:00 p.m. | Welcome |
| Paul Volberding, Committee Chair | |
| 1:05 p.m. | Long COVID: Overview of the course of disease and demographics |
| David Putrino, Director of Rehabilitation Innovation, Icahn School of Medicine at Mount Sinai | |
| 2:00 p.m. | Current practices in defining and diagnosing Long COVID |
| Avindra Nath, Director, Translational Neuroscience Center at National Institute of Neurological Disorders and Stroke | |
| 3:00 p.m. | Adjourn Public Session |
University of California, San Francisco Medical Center at Mission Bay
550 16th Street, San Francisco, CA
MEETING 3
MAY 9, 2023
MISSION HALL, ROOM 2105
| 12:00 p.m. | Welcome and Opening Remarks |
| Paul Volberding, Committee Chair | |
| 12:05 p.m. | Immunology of Long COVID |
| Akiko Iwasaki, Sterling Professor of Immunobiology and Professor of Dermatology and of Molecular, Cellular, and Developmental Biology and of Epidemiology (Microbial Diseases) at Yale School of Medicine; Investigator, Howard Hughes Medical Institute |
| 12:45 p.m. | Long COVID and ME/CFS share both symptoms and underlying biological abnormalities |
| Anthony Komaroff, Steven P. Simcox/Patrick A. Clifford/James H. Higby Professor of Medicine at Harvard Medical School, Senior physician at Brigham and Women’s Hospital in Boston | |
| 1:30 p.m. | BREAK |
| 1:45 p.m. | Epigenetic Diagnosis and the Human “Flight Data Recorder” |
| Eric Van Gieson, Senior Advisor at The Conafay Group, Chief Executive Officer at Severn Innovations | |
| 2:30 p.m. | Closing Remarks |
| Paul Volberding, Committee Chair | |
| 2:35 p.m. | Adjourn Public Session |
The National Academy of Sciences
2101 Constitution Ave NW
Washington, DC 20418
MEETING 4
JULY 24, 2023
NAS BOARD ROOM
| 9:30 a.m. | Welcome and Opening Remarks |
| Paul Volberding, Committee Chair | |
| 9:35 a.m. | Patient experience and follow-up |
| Lucas Denault, Long COVID Patient | |
| Karin Denault, Parent and Caregiver | |
| 10:00 a.m. | Long COVID in children and adolescents |
| Alexandra Yonts, Director, Post-COVID Program and Infectious Diseases Specialist, Children’s National Hospital | |
| 10:45 a.m. | Underserved populations and Long COVID |
| Angela Meriquez Vázquez, MSW, Long COVID Patient and Policy Director, The Children’s Partnership | |
| 11:30 a.m. | Presentation to NASEM Committee on the Long-Term Health Effects Stemming from COVID-19 and Implications for the Social Security Administration |
| Robert Holman, Medical Director, District of Columbia Fire and Emergency Medical Services Department | |
| 12:15 p.m. | Closing Remarks |
| Paul Volberding, Committee Chair | |
| 12:20 p.m. | Adjourn Public Session |
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