Sickle Cell Disease in Social Security Disability Evaluations (2025)

Chapter: 4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers

Previous Chapter: 3 Pain Management in Sickle Cell Disease
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 87
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 88
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 89
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 90
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 91
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 92
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 93
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 94
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 95
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 96
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 97
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 98
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 99
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 100
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 101
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 102
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 103
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 104
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 105
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 106
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 107
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 108
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 109
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 110
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 111
Suggested Citation: "4 Health Care Delivery in Sickle Cell Disease: Patient Choices, Care Settings, and Health Care Providers." National Academies of Sciences, Engineering, and Medicine. 2025. Sickle Cell Disease in Social Security Disability Evaluations. Washington, DC: The National Academies Press. doi: 10.17226/29319.
Page 112
Next Chapter: 5 Effects of Sickle Cell Disease on the Central Nervous System
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