On May 16 and 17, 2022, the Roundtable on Quality Care for People with Serious Illness, the National Cancer Policy Forum and the Forum on Aging, Disability and Independence hosted a public workshop that examined the opportunities to better support family caregiving for people with cancer or other serious illnesses. The workshop featured invited presentations and panel discussions on topics that included:
- Strategies to better capture, understand, and act on family caregiver input and experience to improve patient care and to support family caregivers.
- Research gaps and opportunities to improve the evidence base to guide caregiving for patients with serious illnesses.
- Potential policy and practice opportunities to support family caregivers and advance family-centered care for serious illness, including new models of care delivery and payment.
- Opportunities to better embed a health equity focus across family caregiving research, policy, and practice.
- Lessons learned from the COVID-19 pandemic (e.g., use of telehealth and other remote technologies) that could be applied in the context of caregiving for people with cancer and other serious illnesses.
A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
Speakers and Moderators
Kimberly D. Acquaviva, University of Virginia School of Nursing
Rebekah Angove, Patient Advocate Foundation
Allison Applebaum, Memorial Sloan Kettering Cancer Center
Jennifer Moore Ballentine, CSU Shiley Haynes Institute for Palliative Care
Elton Becenti, Family Caregiver, Northern Navajo Medical Center
Janice F. Bell, University of California at Davis
Cathy Bradley, University of Colorado Cancer Center
Malcoma Brown-Ekeogu, Family Caregiver and Advocate for Frontotemporal Dementia (FTD) Care
Abena Apau Buckley, Family Caregiver
Julie Bynum, University of Michigan
Loretta Christensen, Indian Health Service
Sara Damiano, Ascension
Catherine M. DesRoches, Harvard Medical School
Heidi Donovan, University of Pittsburgh and Magee Womens-Hospital
Alexandra Drane, ARCHANGELS
Fayron Epps, Emory University
Terri Fried, Yale University School of Medicine
Peter Gee, Caregiver Voice
Roger Glen, Family Caregiver
Pamela S. Hinds, National Children’s Medical Center
Lyn-Tise Jones, Family Caregiver and Care Navigator
Randy A. Jones, University of Virginia School of Nursing
Jason Karlawish, University of Pennsylvania
Erin E. Kent, UNC Gillings School of Global Public Health
Rebecca Kirch, National Patient Advocate Foundation
Wendy G. Lichtenthal, Memorial Sloan Kettering Cancer Center
Greg Link, Administration for Community Living
Amy Melnick, National Coalition for Hospice and Palliative Care
Clyde W. Oden Jr., Alameda County Care Alliance
Devin Plote, America’s Health Insurance Plans
Michael Reese-Wittke, National Alliance for Caregiving
Susan Reinhard, AARP Public Policy Institute
Sheria Robinson-Lane, University of Michigan School of Nursing
Dannell Shu, Pediatric Palliative Care National Task Force
Rani E. Snyder, The John A. Hartford Foundation
Salom Teshale, National Academy of State Health Policy
Courtney Harold Van Houtven, Duke University School of Medicine and Duke-Margolis Center for Health Policy
Jennifer L. Wolff, Johns Hopkins Bloomberg School of Public Health
Planning Committee
Grace Campbell, Duquesne University (Co-chair)
Randall A. Oyer, Penn Medicine Lancaster General (Co-chair)
Allison Applebaum, Memorial Sloan Kettering Cancer Center and Weill Cornell Medicine
Jennifer Moore Ballentine, CSU Shiley Haynes Institute for Palliative Care
Cathy Bradley, University of Colorado Cancer Center
Julie Bynum, University of Michigan
Jane Carmody, The John A. Hartford Foundation
Sara Damiano, Ascension
Pamela S. Hinds, George Washington University
Randy A. Jones, University of Virginia School of Nursing
Rebecca Kirch, National Patient Advocate Foundation
Amy Melnick, National Coalition for Hospice and Palliative Care
Clyde W. Oden Jr., Alameda County Care Alliance
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