Completed
The goals of this workshop were to explore ongoing challenges with accessing genetic/genomic services, better understand the role of health care delivery systems and clinicians with delivering equitable access to genetic services, and examine new approaches that may help to reach medically underserved populations.
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Workshop
ยท2018
Genomic medicine is defined as the routine use of genomic information about an individual as part of his or her clinical care as well as the health outcomes and policy implications of that clinical use. It is one approach that has the potential to improve the quality of health care by allowing pract...
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Description
Genomic medicine is advancing rapidly due to research breakthroughs and technology development. However, it is not clear if genetic/genomic services will reach all segments of the population both now and in the near future. To address potential gaps in access to these care services, an ad hoc committee will plan and conduct a one day public workshop to explore disparities in access to genetic/genomic services that exist across different segments of the population (e.g., in medically underserved areas and populations, across different racial/ethnic groups, and socioeconomic levels). The workshop may discuss model programs of care for diverse patient populations, with a focus on examining current challenges, approaches and best practices for alleviating disparities in access, which may include the geographic distribution of providers and services and the potential role of telemedicine. Workshop discussions may also focus on insurance coverage for genetic/genomic services, along with the financial costs for patients of genetic testing and downstream care. A broad array of stakeholders may take part in the workshop, including genomics experts, health economists, public health and health disparities researchers, clinicians, users of the health care system (e.g., consumers, patients), patient advocacy groups, payers, bioethicists, community members, and policy makers. The committee will develop the workshop agenda, select and invite speakers and discussants, and may moderate the discussions. Proceedings of the workshop will be prepared by a designated rapporteur in accordance with institutional policy and procedures.
Collaborators
Committee
Vence L. Bonham, Jr.
Co-Chair
Catherine A. Wicklund
Co-Chair
Bernice Coleman
Member
W. Gregory Feero
Member
Stephanie M. Fullerton
Member
Darrell J. Gaskin
Member
Victoria M. Pratt
Member
Bruce Quinn
Member
Elda Railey
Member
Sheri Schully
Member
Sam Shekar
Member
Janet K. Williams
Member
Sponsors
Department of Health and Human Services
Other, Federal
Private: For Profit
Private: Non Profit
Staff
Sarah Beachy
Lead
Major units and sub-units
Health and Medicine Division
Lead
Board on Health Sciences Policy
Lead