Completed
The Forum on Neuroscience and Nervous System Disorders hosted a public session at the 2015 Alzheimer's Association International Conference on July 20 on assessing the impact of applications of digital health records on Alzheimer's disease research. Presentations examined clinical trial design and digital health record collaborative efforts in Europe, reviewed lessons learned from medical records linkage in the Rochester Epidemiology Project, examined the Medicare claims-based methods for studying digital health records, and examined the ethical, societal, and legal considerations for applying digital health records on Alzheimer's disease research.
Featured publication
Workshop
·2016
Health information technology is providing patients, clinicians, and researchers with access to data that will enable novel approaches to science and medicine. Digital health records (DHRs) are capable of being shared across different health care settings for the examination of possible trends and l...
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Description
An ad hoc committee will plan a public session in workshop format at the 2014 Alzheimer’s Association International Conference on Alzheimer’s Disease. This workshop will explore how digital health records can be applied to support research on Alzheimer’s disease. Specifically, presentations and discussions will be designed to help participants:
- Examine current and future applications of digital health records and their impact on clinical trial design;
- Consider scientific opportunities and challenges associated with applying digital health records to inform Alzheimer’s disease research design and methodologies;
- Discuss infrastructure needs and lessons learned from other medical-records linkage systems; and
- Explore what kinds of ethical, societal, and legal issues should be considered in applying digital health records on Alzheimer’s disease research.
The committee will develop the agenda for the workshop session, select and invite speakers and discussants, and moderate the discussions. An individually authored workshop summary based on the presentations and discussions held during the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
Collaborators
Sponsors
Department of Health and Human Services
National Science Foundation
Other, Federal
Private: For Profit
Private: Non Profit
Staff
Diana Pankevich
Lead
Clare Stroud
Lead
Sheena Posey Norris
Major units and sub-units
Institute of Medicine
Lead
Board on Health Sciences Policy
Lead