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Data Matters: Ethics, Data, and International Research Collaboration in a Changing World

Completed

International collaboration in science and technology research is growing at a remarkable rate. International collaborations and partnerships provide U.S.-based organizations unique opportunities to enhance research and training. International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements vary, and the uses of these data are numerous and require accounting for the effects of data access, use, and sharing on different parties. GUIRR’s I-Group convened to explore the changing opportunities and risks associated with ethical data management and use across disciplinary domains in international research agreements.

Description

An ad hoc committee will plan and conduct a 2.5 day public workshop designed to consider the ethical underpinnings of data-related activities and how perspectives differ across the globe. Ethics is a lens through which the issues of data (collection, sharing, curation, access, protection, and use) can be viewed and will be the focus of this workshop.

The workshop will explore the changing opportunities and risks of data management and use across disciplinary domains to examine advisory principles for consideration when developing international research agreements. The goal is to highlight promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. Two central themes to be considered throughout are: (1) privacy and confidentiality (the timeliness of the privacy discussion - especially international implications of divergent national approaches to privacy), and (2) addressing the changing technology landscape (how new and emerging technologies can help in mapping the complex technology landscape of future research agreements with potential data management challenges). Diverse perspectives with respect to sector, region, and discipline will be represented throughout the workshop to increase the likelihood of identifying common challenges.

An individually authored workshop proceedings will be published.

Collaborators

Committee

Barbara B. Mittleman

Chair

Tilak Agerwala

Member

Ruxandra Draghia

Member

Rachelle D. Hollander

Member

Arturo Pizano

Member

Andres Rechkemmer

Member

Staff

Susan Sauer Sloan

Lead

Megan Nicholson

Major units and sub-units

National Academy of Sciences

Collaborator

National Academy of Medicine

Collaborator

Policy and Global Affairs

Lead

Government-University-Industry-Philanthropy Research Roundtable

Lead

U.S. Science and Innovation Policy

Lead

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