Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs
2020

Consensus

You must be logged in to download this publication.

Select Book Type

Paperback - $67.50
Ebook - $53.99

See project
Request an exam or desk copy

Biomedical research results in the collection and storage of increasingly large and complex data sets. Preserving those data so that they are discoverable, accessible, and interpretable accelerates scientific discovery and improves health outcomes, but requires that researchers, data curators, and data archivists consider the long-term disposition of data and the costs of preserving, archiving, and promoting access to them.

Life Cycle Decisions for Biomedical Data examines and assesses approaches and considerations for forecasting costs for preserving, archiving, and promoting access to biomedical research data. This report provides a comprehensive conceptual framework for cost-effective decision making that encourages data accessibility and reuse for researchers, data managers, data archivists, data scientists, and institutions that support platforms that enable biomedical research data preservation, discoverability, and use.

Additional materials

Public Briefing Slides
Cost Drivers Workbook
Webinar Slides: Forecasting Data Costs for Researchers
Webinar Slides: Forecasting Data Costs for Funders
Webinar Slides: Forecasting Data Costs for Storage Providers
Webinar Video: Forecasting Data Costs for Researchers
Webinar Video: Forecasting Data Costs for Funders
Webinar Video: Forecasting Data Costs for Storage Providers
User Guide: Forecasting Data Costs for Biomedical Researchers
User Guide: Forecasting Data Costs for Funding Organizations
User Guide: Forecasting Data Costs for Storage Providers
Checklist for Administrators at Research Institutions

Publication information

184 pages · 8.5 x 11 · paperback
ISBN Paperback: 0-309-67003-9
ISBN Ebook: 0-309-67004-7
DOI: https://doi.org/10.17226/25639

Suggested citation

National Academies of Sciences, Engineering, and Medicine. 2020. Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs. Washington, DC: The National Academies Press.

Import this citation to:

Bibtext
EndNote
Reference manager

First Name
Last Name
Email (required)
I agree to receive emails from the National Academies (required)

We respect your privacy and will never share your information.

Search this publication

Front Matter i-xiv
Summary 1-9
1 Introduction 10-23
2 Framework Foundation: Data States and Associated Activities 24-32
3 Cost and the Value of Data 33-43
4 The Cost-Forecasting Framework: Identifying Cost Drivers in the Biomedical Data Life Cycle 44-77
5 Applying the Framework to a New State 2 Data Resource 78-96
6 Applying the Framework to a New Data Set 97-108
7 Potential Disruptors to Forecasting Costs 109-118
8 Fostering the Data Management Environment 119-126
Appendixes 127-128
Appendix A: Meetings and Presentations 129-136
Appendix B: Active Data Management Plans as a Planning Tool 137-139
Appendix C: Identifying Salary Ranges for Jobs Relevant to the Data Life Cycle 140-147
Appendix D: Soft Costs for Digital Preservation 148-150
Appendix E: Template to Map Cost Drivers to Data Resource Properties 151-155
Appendix F: Comparison of the Contents Across the Three Data States 156-160
Appendix G: Committee Biographical Information 161-166
Appendix H: Acronyms 167-170

Log In

Former MyNAP users: You'll need to reset your password on your first login to MyAcademies. Click "Forgot password" below to receive a reset link via email. Having trouble? Visit our FAQ page to contact support.

Members of the National Academy of Sciences, National Academy of Engineering, or National Academy of Medicine should log in through their respective Academy portals.

Email (required)
Password (required)

Don't have an account?

Register

Email (required)
New password (required)
Retype password (required) Password must be at least 8 characters
I accept the terms of use
terms of use

Thank You

Thank you for creating a MyAcademies account!

Enjoy free access to thousands of National Academies' publications, a 10% discount off every purchase, and build your personal library.

Forgot Password

Enter the email address for your MyAcademies (formerly MyNAP) account to receive password reset instructions.

Email (required)

Reset Requested

We sent password reset instructions to your email . Follow the link in that email to create a new password. Didn't receive it? Check your spam folder or contact us for assistance.

Reset Password

New password (required)
Retype password (required) Password must be at least 8 characters

Reset Password

Your password has been reset.

Verify email

Verify Your Email Address

We sent a verification link to your email. Please check your inbox (and spam folder) and follow the link to verify your email address. If you did not receive the email, you can request a new verification link below

Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs (2020)

Chapter: Appendix E: Template to Map Cost Drivers to Data Resource Properties

Additional materials

Publication information

Suggested citation

My Academies

Life-Cycle Decisions for Biomedical Data: The Challenge of Forecasting Costs (2020)

Chapter: Appendix E: Template to Map Cost Drivers to Data Resource Properties