| 8:30–8:40 AM |
Welcome to the Workshop
Peggy Maguire, J.D. President Cambia Health Foundation |
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Phillip E. Rodgers, M.D.
Professor of Family Medicine and Internal Medicine, George A. Dean, M.D. Professor and Chair, Department of Family Medicine, University of Michigan Medical School |
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Co-Chairs, Roundtable on Quality Care for People with Serious Illness |
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| 8:40–8:50 AM |
Overview of the Workshop
Jean S. Kutner, M.D., M.S.P.H. Distinguished Professor of Medicine and Associate Dean for Clinical Affairs, University of Colorado School of Medicine Chief Medical Officer, University of Colorado Hospital |
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R. Sean Morrison, M.D.
Ellen and Howard C. Katz Professor and Chair, Brookdale Department of Geriatrics and Palliative Medicine Director, National Palliative Care Research Center, Icahn School of Medicine at Mount Sinai |
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| Co-Chairs, Planning Committee | |
| 8:50–9:25 AM |
Lived Experience Perspective
Benzi Kluger, M.D., M.S. Julius, Helen, and Robert Fine Distinguished Professor of Neurology, University of Rochester Medical Center |
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Kirk Hall, M.B.A.
Patient and Advocate |
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Malenna A. Sumrall, Ph.D.
Patient/Care Partner Advocate, University of Colorado Anschutz |
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Nicole Yarab, B.A., RN
Vice President, Clinical Affairs and Information & Resources, Parkinson’s Foundation |
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| 9:25–10:30 AM |
Session One
State of the Science of Serious Illness Care Research: Past, Current, and Future |
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Moderator: Rebecca A. Aslakson, M.D., Ph.D.
Professor and Chair of the Department of Anesthesiology, Larner College of Medicine at the University of Vermont Health Care Service Chief, Network Department of Anesthesiology, University of Vermont Health Network |
| Speaker | |
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R. Sean Morrison, M.D.
Ellen and Howard C. Katz Professor and Chair, Brookdale Department of Geriatrics and Palliative Medicine Director, National Palliative Care Research Center, Icahn School of Medicine at Mount Sinai |
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| 10:45–12:30 PM |
Session
Two Improving Evidence Generation to Address Gaps in Serious Illness Care Research: Research Methodology/Study Design |
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Moderator: Dio Kavalieratos, Ph.D.
Associate Professor Director of Research and Quality, Division of Palliative Medicine, Department of Family and Preventive Medicine, Rollins School of Public Health, Emory University |
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| Speakers | |
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Douglas B. White, M.D., M.A.S.
Vice Chair and Professor of Critical Care Medicine, Medicine, and Clinical Translational Science, UPMC Endowed Chair for Ethics in Critical Care Medicine Director, Program on Ethics and Decision Making in Critical Illness, CRISMA Center, Department of Critical Care Medicine, University of Pittsburgh School of Medicine |
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J. Nicholas Odom, Ph.D., RN
Doreen C. Harper Endowed Professor of Nursing Director, Caregiver and Bereavement Support Services, University of Alabama at Birmingham |
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Corita Grudzen, M.D., M.S.H.S.
Division Head, Supportive and Acute Care Services Fern Grayer Chair in Oncology Care and Patient Experience, Memorial Sloan Kettering Cancer Center Director, Center for Cancer Care Innovation, and Professor of Emergency Medicine, Weill Cornell Medical College |
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Mireille Jacobson, Ph.D.
Associate Professor and Assistant Dean, Leonard Davis School of Gerontology Codirector, Aging and Cognition Program, Schaeffer Center for Health Policy & Economics, University of Southern California |
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Kathryn Colborn, Ph.D., M.S.P.H.
Associate Professor, Department of Medicine, Division of Healthcare Policy and Research Biostatistics and Analytics Core Lead, ACCORDS Secondary Faculty, Department of Biostatistics and Informatics, University of Colorado Anschutz Medical Campus |
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| Panel Discussion/Audience Q&A | |
| 1:30–3:15 PM |
Session Three
Improving Evidence Generation for Serious Illness Care Research: Outcome Measures and Data Capture |
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Moderator: Anna Gosline, M.P.A.
Senior Director of Strategic Initiatives in the Executive Office, Blue Cross Blue Shield of Massachusetts Executive Director of the Massachusetts Coalition for Serious Illness Care |
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| Speakers | |
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Antonia Bennett, Ph.D.
Professor, Department of Health Policy and Management, and Faculty Director, UNC Patient-Reported Outcomes Core, Gillings School of Global Public Health, University of North Carolina at Chapel Hill |
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Jennifer Mack, M.D., M.P.H.
Associate Professor of Pediatrics, Harvard Medical School Associate Chief, Division of Population Sciences Faculty Vice President for the Office for Faculty Development, Professionalism, and Inclusion, Dana-Farber Cancer Institute |
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Karen Steinhauser, Ph.D.
Professor, Departments of Population Health Sciences and Medicine, Duke University Health Scientist, Durham VA Health System |
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Charlotta Lindvall, M.D., Ph.D.
Assistant Professor, Medicine Director of Clinical Informatics, Department of Informatics and Analytics, Dana-Farber Cancer Institute Physician, Department of Psychosocial Oncology and Palliative Care, Harvard Medical School |
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Vincent Mor, Ph.D.
Florence Pirce Grant University Professor of Health Services, Policy, and Practice, Brown University School of Public Health |
| Panel Discussion/Audience Q&A | |
| 3:30–5:00 PM |
Session Four
Integrating Health Equity into Serious Illness Care Research |
| Co-Moderators: | |
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Sheria Robinson-Lane, Ph.D., M.H.A., M.S., RN
Assistant Professor, Department of Systems, Populations and Leadership, University of Michigan School of Nursing |
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Carine Davila, M.D., M.P.H.
Palliative Care Physician Equity Director, Division of Palliative Care and Geriatric Medicine, Massachusetts General Hospital Clinical Instructor, Harvard Medical School |
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| Speakers | |
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Karen Bullock, Ph.D.
Louise McMahon Ahearn Endowed Professor, School of Social Work, Boston College Faculty Appointment, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute |
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Marie A. Bakitas, D.N.Sc.
Professor, Associate Dean for Research and Scholarship, School of Nursing Codirector, Center for Palliative and Supportive Care, Division of Geriatrics, Gerontology, and Palliative Care Department of Medicine, University of Alabama at Birmingham |
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Carey Candrian, Ph.D.
Associate Professor, Division of General Internal Medicine, University of Colorado School of Medicine |
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Robert A. Winn, M.D.
Director, Massey Cancer Center Senior Associate Dean for Cancer Innovation Professor, Pulmonary Disease and Critical Care Medicine Lipman Chair of Oncology, School of Medicine, Virginia Commonwealth University |
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| Panel Discussion/Audience Q&A | |
| 5:00–5:15 PM |
Workshop Day One Wrap-Up and Adjourn
Jean Kutner and Sean Morrison Planning Committee Co-Chairs |
| 8:30–8:45 AM |
Welcome
Jean Kutner and Sean Morrison Planning Committee Co-Chairs |
| 8:45–10:20 AM |
Session Five
Implementation Science: Translating Research into Practice |
| Co-Moderators: | |
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Huong Nguyen, Ph.D., RN
Interim Director, Division of Health Services Research and Implementation Science, Department of Research & Evaluation, Kaiser Permanente Southern California Professor, Department of Health Systems Science, Kaiser Permanente Bernard J. Tyson School of Medicine |
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Rebecca A. Aslakson, M.D., Ph.D.
Professor and Chair of the Department of Anesthesiology, Larner College of Medicine at the University of Vermont Health Care Service Chief, Network Department of Anesthesiology, University of Vermont Health Network |
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| Speakers | |
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Stephen J. Bartels, M.D., M.S.
James J. and Jean H. Mongan Chair in Health Policy and Community Health, Department of Medicine Professor of Medicine, Massachusetts General Hospital (MGH) and Harvard Medical School Director, Mongan Institute at MGH |
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Meghan Lane-Fall, M.D., M.S.H.P.
Executive Director, Penn Implementation Science Center at the Leonard Davis Institute of Health Economics David E. Longnecker Associate Professor of Anesthesiology and Critical Care and Associate Professor of Epidemiology, Perelman School of Medicine, University of Pennsylvania |
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Kathleen T. Unroe, M.D., M.H.A., M.S.
Associate Professor of Medicine, Indiana University School of Medicine Research Scientist, Indiana University Center for Aging Research |
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Al Siu, M.D.
Professor, Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai |
| Panel Discussion/Audience Q&A | |
| 10:20–11:55 AM |
Session Six
Looking to the Future: Research Priorities for Serious Illness Care |
| Co-Moderators: | |
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Scott Halpern, M.D., Ph.D.
John M. Eisenberg Professor of Medicine, Epidemiology, and Medical Ethics and Health Policy, Perelman School of Medicine Founding Director, Palliative and Advanced Illness Research Center, University of Pennsylvania |
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Jori Bogetz, M.D.
Attending, Pediatric Palliative Care Program Associate Director of Research, Treuman Katz Center Faculty, Palliative Care and Resilience Research Program Seattle Children’s Hospital and Research Institute |
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| Speakers | |
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Jean S. Kutner, M.D., M.S.P.H.
Distinguished Professor of Medicine and Associate Dean for Clinical Affairs, University of Colorado School of Medicine Chief Medical Officer, University of Colorado Hospital |
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Amy Kelley, M.D., M.S.H.S.
Deputy Director, National Institute on Aging, National Institutes of Health |
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Diane E. Meier, M.D.
Founder, Director Emerita, and Strategic Medical Advisor, Center to Advance Palliative Care Codirector, Patty and Jay Baker National Palliative Care Center Professor, Department of Geriatrics and Palliative Medicine, Catherine Gaisman Professor of Medical Ethics, Icahn School of Medicine at Mount Sinai |
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| Panel Discussion/Audience Q&A | |
| 11:55 AM |
Workshop Wrap-Up
Jean Kutner and Sean Morrison Planning Committee Co-Chairs |
| 12:00 PM | Workshop Adjourns |