Previous Chapter: Appendix A: Statement of Task
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.

Appendix B

Workshop Agenda

THURSDAY, NOVEMBER 2, 2023

8:30–8:40 AM Welcome to the Workshop

Peggy Maguire, J.D.

President

Cambia Health Foundation

Phillip E. Rodgers, M.D.

Professor of Family Medicine and Internal Medicine, George A. Dean, M.D. Professor and Chair, Department of Family Medicine, University of Michigan Medical School

Co-Chairs, Roundtable on Quality Care for People with Serious Illness

8:40–8:50 AM Overview of the Workshop

Jean S. Kutner, M.D., M.S.P.H.

Distinguished Professor of Medicine and Associate Dean for Clinical Affairs, University of Colorado School of Medicine

Chief Medical Officer, University of Colorado Hospital

Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
R. Sean Morrison, M.D.

Ellen and Howard C. Katz Professor and Chair, Brookdale Department of Geriatrics and Palliative Medicine

Director, National Palliative Care Research Center, Icahn School of Medicine at Mount Sinai

Co-Chairs, Planning Committee
8:50–9:25 AM Lived Experience Perspective

Benzi Kluger, M.D., M.S.

Julius, Helen, and Robert Fine Distinguished Professor of Neurology, University of Rochester Medical Center

Kirk Hall, M.B.A.

Patient and Advocate

Malenna A. Sumrall, Ph.D.

Patient/Care Partner Advocate, University of Colorado Anschutz

Nicole Yarab, B.A., RN

Vice President, Clinical Affairs and Information & Resources, Parkinson’s Foundation

9:25–10:30 AM Session One

State of the Science of Serious Illness Care Research: Past, Current, and Future

Moderator: Rebecca A. Aslakson, M.D., Ph.D.

Professor and Chair of the Department of Anesthesiology, Larner College of Medicine at the University of Vermont

Health Care Service Chief, Network Department of Anesthesiology, University of Vermont Health Network

Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Speaker
R. Sean Morrison, M.D.

Ellen and Howard C. Katz Professor and Chair, Brookdale Department of Geriatrics and Palliative Medicine

Director, National Palliative Care Research Center, Icahn School of Medicine at Mount Sinai

10:45–12:30 PM Session

Two Improving Evidence Generation to Address Gaps in Serious Illness Care Research: Research Methodology/Study Design

Moderator: Dio Kavalieratos, Ph.D.

Associate Professor

Director of Research and Quality, Division of Palliative Medicine, Department of Family and Preventive Medicine, Rollins School of Public Health, Emory University

Speakers
Douglas B. White, M.D., M.A.S.

Vice Chair and Professor of Critical Care Medicine, Medicine, and Clinical Translational Science,

UPMC Endowed Chair for Ethics in Critical Care Medicine

Director, Program on Ethics and Decision Making in Critical Illness, CRISMA Center, Department of Critical Care Medicine, University of Pittsburgh School of Medicine

J. Nicholas Odom, Ph.D., RN

Doreen C. Harper Endowed Professor of Nursing

Director, Caregiver and Bereavement Support Services, University of Alabama at Birmingham

Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Corita Grudzen, M.D., M.S.H.S.

Division Head, Supportive and Acute Care Services

Fern Grayer Chair in Oncology Care and Patient Experience, Memorial Sloan Kettering Cancer Center

Director, Center for Cancer Care Innovation, and Professor of Emergency Medicine, Weill Cornell Medical College

Mireille Jacobson, Ph.D.

Associate Professor and Assistant Dean, Leonard Davis School of Gerontology

Codirector, Aging and Cognition Program, Schaeffer Center for Health Policy & Economics, University of Southern California

Kathryn Colborn, Ph.D., M.S.P.H.

Associate Professor, Department of Medicine, Division of Healthcare Policy and Research

Biostatistics and Analytics Core Lead, ACCORDS

Secondary Faculty, Department of Biostatistics and Informatics, University of Colorado Anschutz Medical Campus

Panel Discussion/Audience Q&A
1:30–3:15 PM Session Three

Improving Evidence Generation for Serious Illness Care Research: Outcome Measures and Data Capture

Moderator: Anna Gosline, M.P.A.

Senior Director of Strategic Initiatives in the Executive Office, Blue Cross Blue Shield of Massachusetts

Executive Director of the Massachusetts Coalition for Serious Illness Care

Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Speakers
Antonia Bennett, Ph.D.

Professor, Department of Health Policy and Management, and Faculty Director, UNC Patient-Reported Outcomes Core, Gillings School of Global Public Health, University of North Carolina at Chapel Hill

Jennifer Mack, M.D., M.P.H.

Associate Professor of Pediatrics, Harvard Medical School

Associate Chief, Division of Population Sciences

Faculty Vice President for the Office for Faculty Development, Professionalism, and Inclusion, Dana-Farber Cancer Institute

Karen Steinhauser, Ph.D.

Professor, Departments of Population Health Sciences and Medicine, Duke University

Health Scientist, Durham VA Health System

Charlotta Lindvall, M.D., Ph.D.

Assistant Professor, Medicine

Director of Clinical Informatics, Department of Informatics and Analytics, Dana-Farber Cancer Institute

Physician, Department of Psychosocial Oncology and Palliative Care, Harvard Medical School

Vincent Mor, Ph.D.

Florence Pirce Grant University Professor of Health Services, Policy, and Practice, Brown University School of Public Health

Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Panel Discussion/Audience Q&A
3:30–5:00 PM Session Four

Integrating Health Equity into Serious Illness Care Research

Co-Moderators:
Sheria Robinson-Lane, Ph.D., M.H.A., M.S., RN

Assistant Professor, Department of Systems, Populations and Leadership, University of Michigan School of Nursing

Carine Davila, M.D., M.P.H.

Palliative Care Physician

Equity Director, Division of Palliative Care and Geriatric Medicine, Massachusetts General Hospital

Clinical Instructor, Harvard Medical School

Speakers
Karen Bullock, Ph.D.

Louise McMahon Ahearn Endowed Professor, School of Social Work, Boston College

Faculty Appointment, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute

Marie A. Bakitas, D.N.Sc.

Professor, Associate Dean for Research and Scholarship, School of Nursing

Codirector, Center for Palliative and Supportive Care, Division of Geriatrics, Gerontology, and Palliative Care

Department of Medicine, University of Alabama at Birmingham

Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Carey Candrian, Ph.D.

Associate Professor, Division of General Internal Medicine, University of Colorado School of Medicine

Robert A. Winn, M.D.

Director, Massey Cancer Center

Senior Associate Dean for Cancer Innovation

Professor, Pulmonary Disease and Critical Care Medicine

Lipman Chair of Oncology, School of Medicine, Virginia Commonwealth University

Panel Discussion/Audience Q&A
5:00–5:15 PM Workshop Day One Wrap-Up and Adjourn

Jean Kutner and Sean Morrison

Planning Committee Co-Chairs

FRIDAY, NOVEMBER 3, 2023

8:30–8:45 AM Welcome

Jean Kutner and Sean Morrison

Planning Committee Co-Chairs

8:45–10:20 AM Session Five

Implementation Science: Translating Research into Practice

Co-Moderators:
Huong Nguyen, Ph.D., RN

Interim Director, Division of Health Services Research and Implementation Science, Department of Research & Evaluation, Kaiser Permanente Southern California

Professor, Department of Health Systems Science, Kaiser Permanente Bernard J. Tyson School of Medicine

Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Rebecca A. Aslakson, M.D., Ph.D.

Professor and Chair of the Department of Anesthesiology, Larner College of Medicine at the University of Vermont

Health Care Service Chief, Network Department of Anesthesiology, University of Vermont Health Network

Speakers
Stephen J. Bartels, M.D., M.S.

James J. and Jean H. Mongan Chair in Health Policy and Community Health, Department of Medicine

Professor of Medicine, Massachusetts General Hospital (MGH) and Harvard Medical School

Director, Mongan Institute at MGH

Meghan Lane-Fall, M.D., M.S.H.P.

Executive Director, Penn Implementation Science Center at the Leonard Davis Institute of Health Economics

David E. Longnecker Associate Professor of Anesthesiology and Critical Care and Associate Professor of Epidemiology, Perelman School of Medicine, University of Pennsylvania

Kathleen T. Unroe, M.D., M.H.A., M.S.

Associate Professor of Medicine, Indiana University School of Medicine

Research Scientist, Indiana University Center for Aging Research

Al Siu, M.D.

Professor, Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai

Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Panel Discussion/Audience Q&A
10:20–11:55 AM Session Six

Looking to the Future: Research Priorities for Serious Illness Care

Co-Moderators:
Scott Halpern, M.D., Ph.D.

John M. Eisenberg Professor of Medicine, Epidemiology, and Medical Ethics and Health Policy, Perelman School of Medicine

Founding Director, Palliative and Advanced Illness Research Center, University of Pennsylvania

Jori Bogetz, M.D.

Attending, Pediatric Palliative Care Program

Associate Director of Research, Treuman Katz Center Faculty, Palliative Care and Resilience Research Program

Seattle Children’s Hospital and Research Institute

Speakers
Jean S. Kutner, M.D., M.S.P.H.

Distinguished Professor of Medicine and Associate Dean for Clinical Affairs, University of Colorado School of Medicine

Chief Medical Officer, University of Colorado Hospital

Amy Kelley, M.D., M.S.H.S.

Deputy Director, National Institute on Aging, National Institutes of Health

Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Diane E. Meier, M.D.

Founder, Director Emerita, and Strategic Medical Advisor, Center to Advance Palliative Care

Codirector, Patty and Jay Baker National Palliative Care Center

Professor, Department of Geriatrics and Palliative Medicine, Catherine Gaisman Professor of Medical Ethics, Icahn School of Medicine at Mount Sinai

Panel Discussion/Audience Q&A
11:55 AM Workshop Wrap-Up

Jean Kutner and Sean Morrison

Planning Committee Co-Chairs

12:00 PM Workshop Adjourns
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
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Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Page 134
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Page 135
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Page 136
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Page 137
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Page 138
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Page 139
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Page 140
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
Page 141
Suggested Citation: "Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2024. Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence, and Future Directions: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/27760.
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