Completed
A planning committee will host a workshop exploring the challenges and opportunities for creating an optimal care system for individuals with intellectual and developmental disabilities (IDD). It will explore questions related to three areas of focus: models of care that deliver holistic, tailored, and coordinated care; the development of a competent workforce; effective financing and payment approaches. The workshop will focus not only on the health care system, but also on how it might coordinate with peers in other service domains.
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Workshop
·2022
Approximately 7.4 million people in the United States live with an intellectual or developmental disability (IDD), defined by the Centers for Disease Control and Prevention as "a group of conditions due to an impairment in physical, learning, language, or behavior areas. These conditions begin durin...
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Description
A planning committee of the National Academies of Sciences, Engineering, and Medicine will plan a public workshop that will explore the challenges and opportunities related to building an optimal integrated care system for people with intellectual and developmental disabilities (IDD) (e.g. individuals with autism spectrum disorder). The workshop will feature invited presentations and discussions that will explore questions related to models of care, workforce, and financing and payment for care such as the following:
Models of Care
--What are illustrative examples of care models that deliver holistic, tailored (developmentally appropriate and patient-centered), and coordinated care?
--What factors limit the sustainability and/or adoption of these care models?
Workforce Issues
--What is known about the workforce that serves people with IDD?
--What are the facilitators and barriers to improving the competency and capacity of all clinicians to care for people with IDD, particularly for minority and poor populations?
Financing of and Payment for Care
--What key data/analytic gaps do payers and purchasers need addressed in order to design effective financing and payment approaches for IDD care?
--What policy or programmatic changes would be required to ensure appropriate levels of financing for IDD healthcare services, including support for clinical providers to coordinate with peers in other service domains?
The planning committee will plan and organize the workshop, select and invite speakers and discussants, and moderate discussions. A proceedings of the presentations and discussion at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
Collaborators
Sponsors
Lucile Packard Foundation for Children’s Health
Private: Non Profit
Staff
Rose Marie Martinez
Lead