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Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life

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Topics

Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease. Individuals affected by ALS include those living with ALS, their caregivers, presymptomatic individuals at risk for developing ALS, and others. Currently no treatments stop or reverse the disease, although various FDA-approved formulations may extend life by several months. This committee will identify and recommend key actions for the public, private, and nonprofit sectors to undertake to make ALS a livable disease within a decade.

About Publications/Resources Past Events

Events

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life Report Launch Event

  • June 18, 2024
  • 11:00 AM - 12:00 PM (EDT)
  • Past

Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, fatal, neurological disease. Individuals affected by ALS include those living with ALS, their caregivers and families, at-risk ALS genetic...

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop Series #3

  • September 1, 2023
  • 12:00 PM - 3:45 PM (EDT)
  • Past

A National Academies ad hoc committee, “Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life,” will host a virtual public workshop series on September 1, 2023, and will...

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop Series #2

  • August 23, 2023
  • 12:00 PM - 3:00 PM (EDT)
  • Past

A National Academies ad hoc committee, “Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life,” will host a virtual public workshop series on August 23, 2023, and will a...

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Workshop Series #1

  • August 10, 2023
  • 12:00 PM - 3:00 PM (EDT)
  • Workshop
  • Past

A National Academies ad hoc committee, “Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life,” will host a virtual public workshop series on August 10, 2023, and will c...

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life- Meeting #2

  • May 17 - 18, 2023
  • Past

This is the second meeting of the committee and will be conducted in closed (May 17) and open session (morning of May 18). The public session will be hybrid and participants will be able to register t...
Meetings

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Committee Discussion

  • April 18, 2024
  • 12:00 AM - 12:00 AM (EDT)
  • Closed
  • Past

In this meeting the committee discussed the approach to response to review.

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life- Meeting #6

  • February 8 - 9, 2024
  • Closed
  • Past

This is the sixth meeting of the committee and will be hybrid with both in-person and virtual participants. The meeting will be closed and will not include a public session.

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life- January Meeting

  • January 19, 2024
  • 12:00 AM - 12:00 AM (EST)
  • Closed
  • Past

This is the January meeting of the committee and will be virtual. The meeting will be closed and will not include a public session.

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life- December Meeting

  • December 18, 2023
  • 12:00 AM - 12:00 AM (EST)
  • Closed
  • Past

This is the December meeting of the committee and will be virtual. The meeting will be closed and will not include a public session.

Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life - Meeting #5

  • November 29 - 30, 2023
  • Closed
  • Past

This is the fifth meeting of the committee and will be virtual. The meeting will be closed and will not include a public session.
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