Completed
Learning healthcare systems (LHS) describe research-partnered care networks that analyze sources of patient data (e.g., electronic health records, medical billing) and use those insights to continuously improve their health services. LHS' are important contributors to progress in traumatic brain injury (TBI), where much more remains to be understood about which interventions are the most effective, and for whom. Fragmented and siloed LHS data undercuts the system's ability to learn and improve. This one-day public workshop discussed a vision for how data integration in LHS' for TBI can accelerate research and patient care.
Featured publication
Workshop
·2024
Traumatic brain injuries (TBI) affect millions of Americans each year, causing symptoms that can be debilitating and long-lasting and resulting in physical, cognitive, emotional, and financial ramifications. The complexity and heterogeneity of TBI make it challenging to target the right intervention...
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Description
A planning committee of the National Academies of Sciences, Engineering, and Medicine will organize and conduct a 1-day public workshop that brings together experts and key stakeholders to explore the needs, opportunities, gaps, and best practices surrounding data integration in learning healthcare systems (LHCs) for traumatic brain injury (TBI). The workshop will feature invited presentations and discussions that may be designed to:
- Explore the variables impacting how TBI patient data is collected, standardized, harmonized, accessed, and analyzed - and the implications for care and research in LHCs,
- Discuss a vision for how enhanced TBI data integration in LHCs could improve care and advance clinical and epidemiological research,
- Consider key questions and priority use cases that could be explored through integrated patient record databases and TBI registries, and
- Spotlight ongoing efforts towards building integrated research platforms and datasets for TBI.
The planning committee will develop the agenda for the workshop, select and invite speakers and discussants, and moderate the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
Collaborators
Sponsors
Department of Defense
Department of Health and Human Services
Department of Transportation
Other, Federal
Private: For Profit
Private: Non Profit
Staff
Katherine Bowman
Lead
Gayatri Somaiya
