Meeting Psychosocial Needs of Women with Breast Cancer (2004)
Chapter: Appendix A Meeting Psychosocial Needs of Women with Breast Cancer
Appendix A
Meeting Psychosocial Needs of Women with Breast Cancer
National Cancer Policy Board
Institute of Medicine/National Research Council
Supported by the Longaberger Company Through the American Cancer Society
Monday, October 28, 2002
Describing Psychosocial Services
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8:00- 8:30 |
Continental breakfast |
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8:30-9:30 |
Welcome and introduction (Jimmie Holland, Ellen Stovall, and Tom Smith) Overview: The status of mental health service delivery in the U.S. • Psychosocial implications of chronic illness • Delivery of psychosocial services in the U.S. Speaker: Howard H. Goldman Overview: Psychosocial interventions for women with breast cancer • Psychosocial issues throughout the breast cancer trajectory • Prevalence of psychosocial distress • Types of interventions and their modes of delivery |
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Speaker: Jimmie Holland |
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9:30-10:30 |
Identifying women in need of services: The effectiveness of assessment tools • Discussion of commissioned paper Speaker: Patricia Ganz Reactor: Julia Rowland |
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10:30-10:45 |
Break |
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10:45-12:30 |
The effectiveness of psychosocial interventions • Discussion of commissioned paper Speaker: Pamela Goodwin Reactors: Katherine DuHamel; Gary Morrow |
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12:30-1:30 |
Lunch available |
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1:30-3:15 |
Research issues: The need for applied research • Status of research and funding opportunities • Methodological research issues • Research priorities Speaker: Barbara Andersen Reactor: Joan Bloom |
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3:15-3:30 |
Break |
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3:30-5:30 |
Delivering psychosocial interventions (Presentations from selected programs) Introduction: Ellen Stovall • Psychologist in private practice, Helen Coons • Oncologist in community-based practice, Lidia Schapira, Boston—Beth Israel Deaconess • Managed care-based program (Breast Buddy Program), Ann Geiger, Kaiser Permanente, Southern CA • Cancer center-based program, Richard McQuellon, Comprehensive Cancer Center of Wake Forest University |
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• American Cancer Society programs (Reach to Recovery, I Can Cope, Look Good … Feel Better Program), Bonnie Teschendorf • Community-based program, The Wellness Community, Mitch Golant Discussion Leader: Ellen Stovall |
Tuesday, October 29, 2002
Overcoming Barriers to Access
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8:00-8:30 |
Continental breakfast |
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8:30-10:30 |
Changing provider behavior/practices Introduction: Tom Smith • The structure of breast cancer care • What are the barriers to providing psychosocial services in the current delivery system? • How can care systems be designed to incorporate psychosocial service providers (e.g., multidisciplinary team approaches, links to community-based providers)? Discussion leader: Nina Bickell • The role of guidelines • What is the status of guidelines in the U.S.? • How should they be designed and implemented? • What is the potential for guidelines to change practice? Discussion leader: Roger Winn • Quality assurance • What quality assurance initiatives might be considered to improve the delivery of psychosocial services? • How has measurement of patient satisfaction with breast cancer care within managed care affected practice? • Could indicators of psychosocial care be incorporated into these efforts? • How can national goals for improved psychosocial care be achieved? Discussion leaders: Ann Monroe and Bonnie Teschendorf • Consumer roles and perspectives • How can consumers affect changes in practice? Discussion leader: Christine Brunswick |
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10:30-10:45 |
Break |
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10:45-12:30 |
Improving professional education/training Panel Discussion with Participants: • Who provides (or should provide) psychosocial interventions? • How adequate is their training? • What new training opportunities are needed? • How can we assess the effectiveness of training? Panel: Roger Winn (physician perspective) Jamie Ostroff (psychologist and research perspective) Betty Ferrell (nursing perspective) Carolyn Messner (social work perspective) Discussion leader: Jimmie Holland |
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12:30-1:30 |
Lunch available |
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1:30-3:00 |
Reducing individual barriers—social stigma, economic, racial, ethnic, cultural, language, and other barriers Speakers: Alicia Matthews • Reducing stigma Carolina Hinestrosa • Reducing barriers to access in the Latina Community Brian Smedley • Briefing on IOM report, “Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care” Discussion leader: Jimmie Holland |
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3:00-3:15 |
Break |
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3:15-4:45 |
Addressing coverage and payment issues • How are psychosocial and mental health services paid for? • How do reimbursement issues limit access to services (e.g., limits set by managed care)? • Are there reimbursement models to emulate? Speaker: Richard Frank (overview) |
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Panelists: -Psychiatrist, David Wellisch -American Psychological Association (APA), Rus Newman -Centers for Medicare and Medicaid Services (CMS), Madeline Ulrich and Ken Simon -Health Insurance Association of America (HIAA), Henry Desmarais -American Association of Health Plans (AAHP), Carmella Bocchino Discussion Leader: Ellen Stovall |
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4:45-5:30 |
Wrap-up—Future directions, policy options, recommendations Discussion leaders: Tom Smith and Diana Petitti |
