Meeting Psychosocial Needs of Women with Breast Cancer (2004)
Chapter: Front Matter
MEETING PSYCHOSOCIAL NEEDS OF WOMEN WITH BREAST CANCER
Maria Hewitt, Roger Herdman, and Jimmie Holland, Editors
THE NATIONAL ACADEMIES PRESS
Washington, D.C.
www.nap.edu
THE NATIONAL ACADEMIES PRESS
500 Fifth Street, N.W. Washington, DC 20001
NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance.
This study was supported by Contract/Grant No. N02-CO-01029 between the National Academy of Sciences and the National Cancer Institute, and a grant from the Longaberger Company through the American Cancer Society. Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the views of the organizations or agencies that provided support for the project.
Library of Congress Cataloging-in-Publication Data
Meeting psychosocial needs of women with breast cancer / National Cancer Policy Board ; Maria Hewitt, Roger Herdman, and Jimmie Holland, editors.
p. ; cm.
Includes bibliographical references.
ISBN 0-309-09129-2 (pbk.)
1. Breast—Cancer—Psychological aspects. 2. Breast—Cancer—Social aspects. 3. Breast—Cancer—Patients—Services for.
[DNLM: 1. Breast Neoplasms—psychology. 2. Breast Neoplasms—rehabilitation. 3. Counseling—methods. 4. Psychotherapy—methods. 5. Social Support. 6. Survivors—psychology. WP 870 M496 2004] I. Hewitt, Maria Elizabeth. II. Herdman, Roger Cole. III. Holland, Jimmie C. IV. National Cancer Policy Board (U.S.)
RC280.B8M435 2004
616.99′44906—dc22
2004001867
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Copyright 2004 by the National Academy of Sciences. All rights reserved.
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THE NATIONAL ACADEMIES
Advisers to the Nation on Science, Engineering, and Medicine
The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Academy has a mandate that requires it to advise the federal government on scientific and technical matters. Dr. Bruce M. Alberts is president of the National Academy of Sciences.
The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding engineers. It is autonomous in its administration and in the selection of its members, sharing with the National Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineering programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. Wm. A. Wulf is president of the National Academy of Engineering.
The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Institute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Harvey V. Fineberg is president of the Institute of Medicine.
The National Research Council was organized by the National Academy of Sciences in 1916 to associate the broad community of science and technology with the Academy’s purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in providing services to the government, the public, and the scientific and engineering communities. The Council is administered jointly by both Academies and the Institute of Medicine. Dr. Bruce M. Alberts and Dr. Wm. A. Wulf are chair and vice chair, respectively, of the National Research Council.
NATIONAL CANCER POLICY BOARD
JOSEPH SIMONE (Chair),
Simone Consulting, Dunwoody, GA
ELLEN STOVALL (Vice Chair), Executive Director,
National Coalition for Cancer Survivorship, Silver Spring, MD
DIANA PETITTI (Vice Chair), Director,
Research & Evaluation, Kaiser Permanente of Southern California, Pasadena, CA (until April 30, 2003)
BRUCE W. STILLMAN (Vice Chair), Director,
Cold Spring Harbor Laboratory, Cold Spring Harbor, NY
JILL BARGONETTI, Associate Professor,
Department of Biological Sciences, Hunter College, New York, NY
TIM BYERS, Professor of Epidemiology, Program Leader,
Clinical Cancer Prevention & Control, University of Colorado Health Sciences Center, Denver, CO (until April 30, 2003)
TIMOTHY EBERLEIN, Bixby Professor and Chairman,
Department of Surgery, Washington University School of Medicine, St. Louis, MO
KATHY GIUSTI, President,
Multiple Myeloma Research Foundation, New Canaan, CT (as of May 1, 2003).
KAREN HERSEY, Senior Counsel,
Massachusetts Institute of Technology, Cambridge, MA
JIMMIE C. HOLLAND, Chair,
Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, New York, NY
WILLIAM KAELIN, Professor,
Harvard Medical School, Boston, MA
WILLIAM MCGUIRE, Chief Executive Officer,
UnitedHealth Group, Minnetonka, MN
JOHN MENDELSOHN, President,
M. D. Anderson Cancer Center, University of Texas, Houston, TX
KATHLEEN HARDIN MOONEY, Professor,
University of Utah College of Nursing, Salt Lake City, UT
NANCY MUELLER, Professor of Epidemiology,
Harvard School of Public Health, Department of Epidemiology, Boston, MA (until April 30, 2003)
PATRICIA NOLAN, Director,
Rhode Island Department of Health, Providence, RI
DAVID PARKINSON, Oncology Therapeutic Head,
Amgen Inc., Thousand Oaks, CA
JOHN POTTER, Senior Vice President and Director,
Cancer Prevention Research Program, Fred Hutchinson Cancer Research Center, Seattle, WA (as of May 1, 2003)
CECIL B. PICKETT, Executive Vice President,
Discovery Research, Schering-Plough Research Institute, Kenilworth, NJ (until April 30, 2003)
LOUISE RUSSELL, Professor of Economics,
Rutgers University, New Brunswick, NJ
THOMAS J. SMITH, Professor of Medicine,
Virginia Commonwealth University, Richmond, VA
EDWARD WAGNER, Director,
W.A. (Sandy) MacColl Institute for Healthcare Innovation, Group Health Cooperative, Seattle, WA (as of May 1, 2003)
SUSAN WEINER, President,
The Children’s Cause, Silver Spring, MD (until April 30, 2003)
ROBERT C. YOUNG, President,
American Cancer Society and the Fox Chase Cancer Center, Philadelphia, PA
Consultants
PATRICIA A. GANZ,
Jonsson Comprehensive Cancer Center, UCLA Schools of Medicine and Public Health, Los Angeles, CA
PAMELA J. GOODWIN,
Marvelle Koffler Breast Centre, Department of Medicine, Division of Epidemiology, Samuel Lunenfeld Research Institute, Mount Sinai Hospital, University of Toronto
Study Staff
MARIA HEWITT, Study Director (until April 18, 2003)
ROGER HERDMAN, Study Director (as of April 19, 2003)
GELSEY LYNN, Research Assistant
TIMOTHY BRENNAN, Research Assistant
JAMES RYAN, Editor
NCPB Staff
ROGER HERDMAN, Director,
National Cancer Policy Board
ANIKE JOHNSON, Administrator
ROSA POMMIER, Financial Associate
Reviewers
This report has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the National Research Council’s Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confidential to protect the integrity of the deliberative process. We wish to thank the following individuals for their review of this report:
Joan R. Bloom
University of California, Berkeley
Joanna Cain
Oregon Health & Science University
Michele Dabrowski
University of Utah
Betty Ferrell
City of Hope National Medical Center
Stewart B. Fleishman
Beth Israel Cancer Center
Donna Greenberg
Massachusetts General Hospital
Richard P. McQuellon
Wake Forest University Baptist Medical Center
Anne Moore
Cornell University
Edward Perrin
University of Washington
Sally Redman
Institute for Health Research, Australia
Lee N. Robins
Washington University School of Medicine
Lidia Schapira
Massachusetts General Hospital
Selma R. Schimmel
Vital Options International
Although the reviewers listed above have provided many constructive comments and suggestions, they were not asked to endorse the conclusions or recommendations, nor did they see the final draft of the report before its release. The review of this report was overseen by Merwyn Greenlick, Oregon Health & Science University, and Enriqueta Bond, Burroughs Wellcome Fund. Appointed by the National Research Council and the Institute of Medicine, they were responsible for making certain that an independent examination of this report was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this report rests entirely with the authoring committee and the institution.
