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Improving Consent and Response in Longitudinal Studies of Aging: A Workshop

Completed

The Committee on National Statistics will host a 2-day public virtual workshop, sponsored by the National Institute on Aging, to discuss methods to improve response and retention and to enhance consent protocols for record linkage in nationally representative longitudinal studies of older Americans.

Description

An ad hoc planning committee of the National Academies of Sciences, Engineering, and Medicine will plan and execute a two-day public workshop to discuss methods to improve response/retention and enhance consent protocols for biomarker and program (administrative) data linkage in nationally representative longitudinal studies of older Americans. The methods discussed will include (1) innovations in survey methods with a multidisciplinary approach such as framing of questions and consent protocols employing insights from psychology and behavioral economics; (2) messaging and participant engagement approaches about the value of study participation; and (3) efforts to understand what would motivate consent to specific protocol and efforts to understand if a study has adequately secured a social license/trust with respondents.
The planning committee will define the specific topics to be addressed, develop the agenda, and invite speakers and other participants. After the workshop, proceedings of the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

Contributors

Committee

Chair

Member

Member

Member

Member

Sponsors

National Institute on Aging

Staff

Brian Harris-Kojetin

Lead

Rebecca Krone

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