Improving Consent and Response in Longitudinal Studies of Aging: Proceedings of a Workshop (2022)
Chapter: Appendix A: Public Meeting Agenda
Appendix A
Public Meeting Agenda
IMPROVING CONSENT AND RESPONSE IN LONGITUDINAL STUDIES OF AGING: A WORKSHOP1
September 27–28, 2021
| 12:00 | Welcome and Introduction |
Brian Harris-Kojetin, CNSTAT | |
John Phillips, National Institute on Aging | |
Goals of the Workshop | |
Michael Davern, NORC at the University of Chicago, Planning Committee Chair |
BACKGROUND AND CONTEXT
| 12:15 | Opportunities and Challenges with Response and Consent in Longitudinal Surveys on Aging |
Chair:Vetta L. Sanders Thompson, Washington University in St. Louis | |
___________________
1 Presenters’ slides and videos of the entire workshop are available at https://www.nationalacademies.org/event/09-27-2021/improving-consent-and-response-in-longitudinal-studiesof-aging-a-workshop.
|
Participants: |
|
|
Carol Ryff, University of Wisconsin |
|
|
Linda Waite, University of Chicago |
|
|
Bob Hummer, University of North Carolina, Chapel Hill |
|
|
David Weir, University of Michigan |
|
| 1:20 | Identifying and Reducing Selection Bias |
|
Chair: Jennifer H. Madans, retired, National Center for Health Statistics |
|
|
Participants: |
|
|
Joe Sakshaug, University of Mannheim |
|
|
Debra Reed Gillette, Centers for Medicare and Medicaid Services |
|
|
Andy Peytchev, RTI International |
|
| 2:15 | Break |
PARTICIPATION
| 2:30 | Maximizing Respondent Retention |
|
Chair: Michael Davern, NORC at the University of Chicago |
|
|
Participants: |
|
|
Nicole Watson, University of Melbourne |
|
|
Eric Grodsky, University of Wisconsin, and Rachel Canas, NORC at the University of Chicago |
|
|
Pam Herd, Georgetown University |
DATA LINKAGE
| 3:30 | Challenges to Connecting Data across Agencies |
|
Chair: Jennifer H. Madans, retired, National Center for Health Statistics |
|
|
Participants: |
|
|
Beth Virnig, University of Minnesota |
|
|
Lisa Mirel, National Center for Health Statistics |
|
| 4:30 | Day One Wrap-Up |
|
Michael Davern, NORC at the University of Chicago |
|
| 4:45 | Adjourn |
DAY 2
TUESDAY SEPTEMBER 28, 2021
| 12:00 | Intro and Recap of Day One |
Michael Davern, NORC at the University of Chicago, Planning Committee Chair |
INFORMED CONSENT
| 12:10 | The Complexity of Informed Consent |
Chair:Vetta L. Sanders Thompson, Washington University in St. Louis | |
Participants: | |
Annette Jäckle, University of Essex | |
Katie O’Doherty, NORC at the University of Chicago | |
Christine Grady, National Institutes of Health | |
| 1:05 | Ethical Considerations for Obtaining Informed Consent |
Chair: Vetta L. Sanders Thompson, Washington University in St. Louis | |
Participants: | |
Stephanie Solomon Cargill, St. Louis University | |
Emily Largent, University of Pennsylvania | |
Sunita Sah, University of Cambridge and Cornell University | |
| 2:00 | Break |
PARTICIPATION
| 2:15 | Participant Engagement: Insights from Behavioral Science Research |
Chair:Sunita Sah, University of Cambridge and Cornell University | |
Participants: | |
Bettina Drake, Washington University School of Medicine in St. Louis | |
Amelia Burke-Garcia, NORC at the University of Chicago |
INNOVATION
| 3:15 | Looking Ahead: Applying Innovative Strategies to Improve Consent and Response |
Chair:Michael Davern, NORC at the University of Chicago | |
Participants: | |
Annette Jäckle, University of Essex | |
Timothy Smeeding, University of Wisconsin | |
Andy Peytchev, RTI International | |
| 4:15 | Wrap-Up Discussion |
Chair:Brian Harris-Kojetin, CNSTAT | |
Participants: | |
John Phillips, National Institute on Aging | |
Michael Davern, NORC at the University of Chicago | |
Jennifer H. Madans, retired, National Center for Health Statistics | |
Sunita Sah, University of Cambridge and Cornell University | |
Vetta L. Sanders Thompson, Washington University in St. Louis | |
| 5:00 | Adjourn |
