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A planning committee of the National Academies of Sciences, Engineering, and Medicine will organize and conduct a public workshop to explore existing evidence and knowledge gaps and opportunities to advance future research for serious illness care. Workshop presentations and discussions will focus on areas that may include:
- Inclusive research approaches to advance health equity in care
- Safe and effective therapies to address pain and other physical and psychological symptoms
- Quality measurement for serious illness
- The integration of behavioral/mental health care into serious illness care
- Care delivery models that address the patient and family needs
- Opportunities for research coordination and collaboration
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Workshop
ยท2024
To explore the current and future state of serious illness care research, the National Academies Roundtable on Quality Care for People with Serious Illness hosted a public workshop in November 2023. Speakers identified research gaps and challenges and explored strategies and opportunities to further...
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Description
A planning committee of the National Academies of Sciences, Engineering, and Medicine will organize and conduct a public workshop to explore existing evidence and knowledge gaps and opportunities to advance future research for serious illness care. Workshop presentations and discussions will focus on areas that may include:
- Inclusive research approaches to advance health equity in care for the diverse population of people with serious illness
- Safe and effective therapies to address pain and other physical and psychological symptoms and improve the quality of life for people with serious illness
- Quality measurement for serious illness (e.g., development of patient-centered outcome measures for a diverse patient population)
- The integration of behavioral/mental health care into serious illness care
- Care delivery models that effectively address the needs of people with serious illness and their families, including existing gaps in care provided by distinct delivery models as well as areas for future research to further develop the evidence base on the capacity of novel care delivery models to address the needs of people with serious illness and their families
- Opportunities for research coordination and collaboration among diverse stakeholders, including members of the interdisciplinary care team, informal and formal caregivers, researchers, and other stakeholders who could strengthen the research enterprise with the goal of enhancing care for people of all ages and stages of serious illness.
The planning committee will organize the workshop, develop the agenda, select and invite speakers and discussants, and moderate or identify moderators for the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
Contributors
Committee
Jean S. Kutner
Co-Chair
R. S. Morrison
Co-Chair
Rebecca Aslakson
Member
Jori F. Bogetz
Member
Karen Bullock
Member
Carey Candrian
Member
Carine Davila
Member
Anna Gosline
Member
Scott Halpern
Member
Dio Kavalieratos
Member
Huong Q. Nguyen
Member
Sheria Robinson-Lane
Member
Sponsors
American Academy Of Hospice And Palliative Medicine
American Geriatrics Society
Ascension Health
Association of Professional Chaplains
Association of Rehabilitation Nurses
Blue Cross Blue Shield Association
Blue Cross Blue Shield of Massachusetts
Cambia Health Foundation
Catholic Health Association
Cedars-Sinai Health System
Center to Advance Palliative Care
Coalition to Transform Advanced Care
Hospice and Palliative Nurses Association
Kaiser Permanente
National Association of Social Workers
National Coalition for Hospice and Palliative Care
National Hospice and Palliative Care Organization
National Palliative Care Research Center
National Patient Advocate Foundation
New York Academy of Medicine
Patient-Centered Outcomes Research Institute
The California State University Shiley Haynes Institute for Palliative Care
The Greenwall Foundation
The John A. Hartford Foundation
Staff
Laurene Graig
Lead
Abian Hailu