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Serious Illness Care Research: Exploring Current Knowledge, Emerging Evidence and Future Directions: A Workshop

Completed

A planning committee of the National Academies of Sciences, Engineering, and Medicine will organize and conduct a public workshop to explore existing evidence and knowledge gaps and opportunities to advance future research for serious illness care. Workshop presentations and discussions will focus on areas that may include:

  • Inclusive research approaches to advance health equity in care
  • Safe and effective therapies to address pain and other physical and psychological symptoms
  • Quality measurement for serious illness
  • The integration of behavioral/mental health care into serious illness care
  • Care delivery models that address the patient and family needs
  • Opportunities for research coordination and collaboration

Description

A planning committee of the National Academies of Sciences, Engineering, and Medicine will organize and conduct a public workshop to explore existing evidence and knowledge gaps and opportunities to advance future research for serious illness care. Workshop presentations and discussions will focus on areas that may include:

  • Inclusive research approaches to advance health equity in care for the diverse population of people with serious illness
  • Safe and effective therapies to address pain and other physical and psychological symptoms and improve the quality of life for people with serious illness
  • Quality measurement for serious illness (e.g., development of patient-centered outcome measures for a diverse patient population)
  • The integration of behavioral/mental health care into serious illness care
  • Care delivery models that effectively address the needs of people with serious illness and their families, including existing gaps in care provided by distinct delivery models as well as areas for future research to further develop the evidence base on the capacity of novel care delivery models to address the needs of people with serious illness and their families
  • Opportunities for research coordination and collaboration among diverse stakeholders, including members of the interdisciplinary care team, informal and formal caregivers, researchers, and other stakeholders who could strengthen the research enterprise with the goal of enhancing care for people of all ages and stages of serious illness.

The planning committee will organize the workshop, develop the agenda, select and invite speakers and discussants, and moderate or identify moderators for the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.

Contributors

Committee

Jean S. Kutner

Co-Chair

R. S. Morrison

Co-Chair

Rebecca Aslakson

Member

Jori F. Bogetz

Member

Karen Bullock

Member

Carey Candrian

Member

Carine Davila

Member

Anna Gosline

Member

Scott Halpern

Member

Dio Kavalieratos

Member

Huong Q. Nguyen

Member

Sheria Robinson-Lane

Member

Sponsors

American Academy Of Hospice And Palliative Medicine

American Geriatrics Society

Ascension Health

Association of Professional Chaplains

Association of Rehabilitation Nurses

Blue Cross Blue Shield Association

Blue Cross Blue Shield of Massachusetts

Cambia Health Foundation

Catholic Health Association

Cedars-Sinai Health System

Center to Advance Palliative Care

Coalition to Transform Advanced Care

Hospice and Palliative Nurses Association

Kaiser Permanente

National Association of Social Workers

National Coalition for Hospice and Palliative Care

National Hospice and Palliative Care Organization

National Palliative Care Research Center

National Patient Advocate Foundation

New York Academy of Medicine

Patient-Centered Outcomes Research Institute

The California State University Shiley Haynes Institute for Palliative Care

The Greenwall Foundation

The John A. Hartford Foundation

Staff

Laurene Graig

Lead

Abian Hailu

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