Forum on Neuroscience and Nervous System Disorders

Forum on Neuroscience and Nervous System Disorders Fall Membership Meeting

October 30, 2023

9:00 AM - 4:30 PM (ET)

Past

About

This is the Fall 2023 Membership Meeting of the Forum on Neuroscience and Nervous System Disorders. Members will receive an update on current activities, discuss emerging topics, and plan for future events.

Contact

Contact us

neuroforum@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Workshop

Toward a Common Research Agenda in Infection - Associated Chronic Illnesses: A Workshop to Examine Common, Overlapping Clinical and Biological Factors

June 29 - 30, 2023

Past

Materials

About

Background:

The current concern for “long COVID” underscores an increasing recognition of chronic illnesses that appear to arise from infectious diseases. This overlooked, growing public health problem often includes a patient history of infection by viral or bacterial pathogens followed by long-lasting and often debilitating symptoms including severe fatigue, cognitive impairment, and multi-organ dysfunction. Examples of infection-associated chronic illnesses include:

Long COVID or post-acute sequelae of COVID-19: Between 10 to 30% of patients infected with SARS-CoV-2 develop chronic symptoms that lead to a diagnosis of long COVID. This estimation translates to a disease burden of between 7.7 million and 23 million patients who will be living with long COVID by February 2022.
Myalgic encephalomyelitis/chronic fatigue disease (ME/CFS): ME/CFS onset is often associated with a prior, unidentified infectious episode. Approximately 1.7 to 3.3 million patients in the U.S. are diagnosed with ME/CFS and experience chronic, multi-organ symptoms.
Persistent or post-treatment Lyme disease: Between 10-20% of Lyme disease patients develop persistent and debilitating symptoms after standard antibiotic treatment There are approximately 2 million patients in the U.S. living with persistent or post-treatment Lyme disease syndrome.
Multiple sclerosis: A strong association of multiple sclerosis with Epstein-Barr virus infection was recently reported. In the US, more than 700,000 patients are living with multiple sclerosis.

In addition to the debilitating physical impact on patients, chronic illnesses present broader societal impacts. For example, between 31-70% of COVID patients remain absent from work after the acute phase of the disease and long COVID may be responsible for 1.6 million fewer full-time workers in the U.S. labor market. In the United Kingdom, an estimated economic loss of 32.2 billion pounds over 10 years will be attributable to permanent injury from COVID-19 in adults, 92% of which may be due to long COVID.

Given the commonality in chronic symptoms among long COVID, persistent Lyme disease syndrome, ME/CFS, multiple sclerosis and other conditions, it is not surprising to find similarities in the leading hypotheses for the explanation of these illnesses; e.g., pathogen or antigen persistence, immune response dysregulation, altered neurologic function, and altered microbiome composition and activity. Researchers studying different infection-associated chronic illnesses face common challenges in identifying disease biomarkers and developing diagnostics and therapeutic options.

In addition to this workshop, other National Academies activities are addressing the significance of infection-associated chronic illnesses. The following activities are focused on the impacts of the COVID-19 pandemic:

About:

Participants can attend the workshop both in person and virtually. On June 29 and 30, the Workshop will take place in Keck 100. For those who attend the Workshop in person, breakfast and lunch will be provided.

Planning Committee:

Timothy Coetzee, co-Chair
National Multiple Sclerosis Society

Timothy Endy, co-Chair
CEPI; State University of New York, Upstate Medical University

Amy Proal
PolyBio Research Foundation

Avindra Nath
National Institute of Neurological Disorders and Stroke, NIH

Brian Fallon
Columbia University Irving Medical Center, New York State Psychiatric Institute

Lorraine Johnson
LymeDisease.org, MyLymeData

Melissa Nolan
University of South Carolina

Rafael Obregon
UNICEF

Peter Rowe
Johns Hopkins University School of Medicine, Children's Center

Organizing Project

Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: A Workshop to Examine Common, Overlapping Clinical and Biological Factors

Contact

Claire Biffl

(202) 334-2178
microbialthreats@nas.edu

Location

Keck Center

500 5th St NW

Washington DC 20001, USA

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Forum on Neuroscience and Nervous System Disorders June Membership Meeting

June 14, 2023

1:00 PM - 4:00 PM (ET)

Past

About

This is the June 2023 Membership Meeting of the Forum on Neuroscience and Nervous System Disorders. Members will receive an update on current activities, discuss emerging topics, and plan for future events.

Contact

Contact us

neuroforum@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Forum on Neuroscience and Nervous System Disorders Spring Membership Meeting

March 13, 2023

9:00 AM - 12:00 PM (ET)

Past

About

This is the Spring 2023 Membership Meeting of the Forum on Neuroscience and Nervous System Disorders. Members will receive an update on current activities, discuss emerging topics, and plan for future events.

Contact

Contact us

neuroforum@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Forum on Neuroscience and Nervous System Disorders - Fall Membership Meeting

October 25, 2022

9:00 AM - 3:45 PM (ET)

Past

About

This is the Fall 2022 Membership Meeting of the Forum on Neuroscience and Nervous System Disorders. Members will receive an update on current activities, discuss emerging topics, and plan for future events.

Contact

Eden Neleman

(202) 334-2131
eneleman@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Meeting

Forum on Neuroscience and Nervous System Disorders - Spring 2022 Membership Meeting

February 28, 2022

10:00 AM - 3:00 PM (ET)

Past

About

This is the Spring 2022 Membership Meeting of the Forum on Neuroscience and Nervous System Disorders. Members will receive an update on current activities, discuss emerging topics, and plan for future events.

Contact

Forum Staff

neuroforum@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Workshop

Evolving the Culture of Science and Training in Neuroscience to Meet a Changing World: A Virtual Workshop

February 22, 2021

12:00 PM - 2:00 PM (ET)

Past

Discussion

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Materials

Panelist Biographical Sketches

About

About this Workshop

Recent events, including the COVID-19 pandemic, have underscored the importance of science and of scientific training, but also the challenges and needed cultural shifts. This virtual workshop—the fifth and final in a series—brought together the themes discussed in preceding workshops and consider how the culture of science and scientific training can become more inclusive, balanced, and adaptive to changing times. Topics discussed included redefining the metrics of success in science; the need for training that supports collaboration, interdisciplinary research, and team science; training for varied career paths; models of training and career structures that allow for commitments in one’s personal life and that support mental health and well-being.

About the Workshop Series on Neuroscience Training

Cutting-edge neuroscience research increasingly demands extensive technological, computational, and statistical skills, and involves large collaborations. Trainees are pursuing a broad range of careers in academia, private sector industries--which has evolved beyond pharmaceutical and biotech companies, to include engineering, data science, venture capital firms, and finance--policy, publishing, and non-profit organizations. Moreover, traditional boundaries between sectors are becoming less rigid, with more extensive partnerships among the private sector and academia and more academics helping to found biotech companies. Taken together, these factors raise important questions about to how to design training programs that foster innovation across a dynamic ecosystem and ensure that a diverse next generation of neuroscientists has the knowledge, skillset, and support needed to pursue multiple career paths devoted to advancing biomedical science.

The Action Collaborative on Neuroscience Training: Developing a Nimble and Versatile Workforce, an initiative associated with the National Academies’ Forum on Neuroscience and Nervous System Disorders, brings together a wide range of stakeholders, representing different sectors and career stages, to examine current and future workforce needs within and outside of academia and explore how these should inform neuroscience training programs.

The action collaborative’s virtual workshop series aims to illuminate critical issues and provide a venue for sharing ways to move forward. Workshops in this series have addressed topics such as:

Racial justice, diversity, equity, and inclusion in neuroscience training (August 20, 2020);
Neuroscience training in challenging times (January 19, 2021);
Fostering inclusion, equity, and diversity in neuroscience training (January 25, 2021);
Re-envisioning postdoctoral training in neuroscience (February 16, 2021); and
Evolving the culture of science and training in neuroscience to meet a changing world (February 22, 2021).

Action Collaborative Members

Rita Balice-Gordon (Co-Chair), Muna Therapeutics
Katja Brose (Co-Chair), The Chan Zuckerberg Initiative
Rosalind Segal (Co-Chair), Harvard University
Huda Akil, University of Michigan
David Cox, IBM Research AI
Sara Fenstermacher, New York University
Ayana Jordan, Yale School of Medicine
Stephen Korn, National Institute of Neurological Disorders and Stroke
Walter Koroshetz, National Institute of Neurological Disorders and Stroke
John Krystal, Yale School of Medicine
Alan Leshner, American Association for the Advancement of Science (CEO Emeritus)
Peter MacLeish, Morehouse School of Medicine
Carol Mason, Columbia University
Gentry Patrick, University of California, San Diego
Mark Rasenick, The University of Illinois at Chicago
Todd Sherer, The Michael J. Fox Foundation for Parkinson’s Research
Kaela S. Singleton, Emory University
M. Morgan Taylor, Broad Institute of MIT and Harvard
Ashlee Van’t Veer, National Institute of Mental Health
Cristin Welle, University of Colorado, Denver
Andrew Welchman, Wellcome Trust

Organizing Project

Neuroscience Training: Developing a Nimble and Versatile Workforce – A Virtual Workshop Series

Contact

Sheena Posey Norris

sposey@nas.edu

Disclaimer

It is essential to the National Academies mission of providing evidence-based advice that participants in any of our meetings or events avoid political or partisan statements or commentary and maintain a culture of mutual respect. The statements and presentations during our meetings or events are solely those of the individual participants and do not necessarily represent the views of other participants or the National Academy of Sciences, which is a non-partisan, tax exempt organization that includes under its Charter the National Academy of Engineering and National Academy of Medicine, and that operates the National Research Council.

Discover how active engagement in the forum is fostering a collaborative arena for thought leaders to cultivate fresh perspectives and inspire transformative ideas that could influence the trajectory of the field.

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Forum on Neuroscience and Nervous System Disorders